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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Managing weight

I stopped eating carbs and sugars. I have lost a lot of weight. How do you manage weight? Can I have carbs...

Can Neuromyelitis Optica Occur in Children?

Yes, Neuromyelitis Optica (NMO) can occur in children, though it is relatively rare. Pediatric NMO often presents with similar symptoms to those...

What is Neuromyelitis Optica and How is it Managed?

Neuromyelitis optica (NMO) is a rare autoimmune disorder that affects the central nervous system, specifically targeting the optic nerves and spinal cord...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get...

Advocating for yourself

The road to an NMOSD diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only...

Working with Pain

Hi friends! I’ve been having a hard time with working a regular job due to the pain I get. Does anyone else...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for...

Acquiring assistance

i currently live in Florida As a caregiver with a love one with NMO where do we go to get the proper...

Off topic- watch Celine Dion's story

This is off topic I know, but I just watched Celine Dion's story on amazon " I am Celine Dion" It's a...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

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