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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you...

I Don’t Feel Validated Unless I’m Working!!

I am a nurse and a chef, but right now I don’t know what I’ll be able to do physically for the...

Symptoms

I am working full time, and over the past month I am having stiffness in my lower back I get weird tingling...

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of...

IVIG to prevent relapse

Is anyone being treated with IVIG and steroids to prevent relapse?...

Featured

Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do...

Accommodations in the workplace

Hello, I have had NMO for the last three years. I am a Special Education (mild/moderate) Teacher and have been teaching for...

Living with NMOSD

Hi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I...

Visiting an NMOSD clinic

Has anyone visited an NMOSD clinic? Have you been seen by a specialist whose focus is entirely on NMOSD? What was that...

Struggling with vision

I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on...

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